Thanks to Kyle Citro for alerting us to the very important event coming to Richmond.
This is the 1st year for this walk in Richmond, and they are hoping to make it a great success. Kyle’s daughter has Chiari Malformation, Ehler’s Danlos Syndrome as well as Mitochondrial Disease. She had brain surgery last year to help with symptoms as there currently is no cure.
unite@night will be a one mile casual evening walk, in various locations around the country, during the month of June. This walk will bring together people who are suffering with the devastating effects of Chiari malformation, syringomyelia, and related disorders. Richmond’s walk is at Innsbrook on June 15, 2013.
unite@night will support CSF Chapters and Co-Ops to provide education and increase awareness while funding research projects that can potentially find answers to help those who are fighting these disorders.
Watch the video below to learn more. Mark your calendars now for this walk to increase awareness and further research. Even if you can’t make the walk, click here to support Kyle’s team by donating. Every $1 helps!
About The Organization
The Chiari & Syringomyelia Foundation, Inc. is a national 501(c)(3) organization committed to disseminating accurate and current information about the treatments for, and best practices surrounding the management of Chiari malformation (CM), syringomyelia (SM) and related disorders. Many recognized world-class physicians, scientists and professionals have agreed to collaborate and form a superior Scientific Education & Advisory (SEA) Board. The trusted and dedicated members of our Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families, and patients, many of whom have been advocates in the CM & SM community for years. All members of the organization have the skills and passion to create, fund, and direct programs and research that will change the lives of the over one million families affected by CM, SM, and related disorders.
